I wake up to the light of the day peaking in behind the blinds. My sheets, needing a change, are all crumpled up beneath me. I reach over for my phone, 9.08am. Dave pops his head in. “Are you keen to go to Healesville?” I smile, and nod. Truth be told I would probably opt…
ME/CFS and Me
I had a bit of a to-do with my doctor last week. She is such a lovely woman, and has been an amazing champion of me, but I am desperate for me not to be ill for the rest of my life, so when she refused to look at a possibility I came up with…
A journey to weight loss surgery, or not
Backwards. Forwards. Backwards. Forwards. Backwards. Forwards. Do I. Don’t I. Do I. Don’t I. The pendulum of thoughts leave tired, worn tracks across my mind. I am so tired. I’m a big woman. I never wanted to admit that. In a world that idolises the skinny, I never wanted to face my reality. I can…
Ranty humanitarian advocate – that’s me!
Over the past, oh I don’t know, decade maybe, I have become really ranty. Friends, family and those of you who have followed me for some time in my other blogs will know this. I can’t quite decide if this is cultural, or perhaps an age thing, or perhaps a social media thing. Probably the…
My journey to chronic illness
In November 2019, I travelled to South Africa to see my family. Mentally, I wasn’t in the best place and as it can be for family gatherings, it had its challenging moments. I returned tired and mentally depleted. This is my truth. December 2019 was a whirlwind month preparing for the family to come around…
Letters to Little Sarah – 17.08.2021
Before you read this first entry in Letters to Little Sarah, I wanted to give some context of how this came about. In May 2020, I was diagnosed with Autism. I was 52. A diagnosis of ADHD followed a year later. Whilst I thought discovering I was neurodivergent would immediately make me feel better, it…
The self we cannot see
How did I get here? To this place, where I have no place? I look to the right of me and I see a ghost. A ghost of a person who has walked beside me my whole life – a child really. A ghost of a little girl who has been waiting for me, but…
A sense of place
Sitting at my desk in my craft room, making some cards for some friends, radio playing in the background, my thoughts turn to what it means to have a sense of place and with it a sense of belonging. I am transported to age 8 when I am catapulted from our small 2-up, 2-down council…
Project Hope
I have heard it said that some Autistics have an ability to feel so much empathy that they can feel extreme pain if someone else around them is in pain. This of course flies in the face of what many still believe about Autistics. I have always felt the pain of the others around me….
Autism is not a disease!
One of the things that has come to light since my Autism diagnosis is when my core values appear to me to be either under threat or are being transgressed in any way, I become very black and white in my thinking. I’ll admit, this came as a bit of a shock. Whilst I have…