I have been trying to write a post for months. Where once I had so much to say – some would argue too much – now, words no longer come. They stumble, get stuck in my throat, or in the case of writing a post, my fingers. I miss being able to write. I miss…
Category: ME/CFS
Masking is life
This morning, this study landed in my inbox. Masking is Life: Experiences of Masking in Autistic and Nonautistic Adults I don’t know how we learn this, but from a very early age, we are taught that what we choose to do as a career as adults forever defines who we are as people. People who…
Ramblings
I’m on the sofa. Completely shattered after what feels like one tsunami of life events after another. Looking from the outside people see a beautiful home, good income, what on earth does she have to worry about, or be miserable about. I feel very judged. And guilty. I know I have so much. I castigate…
ME/CFS and Me
I had a bit of a to-do with my doctor last week. She is such a lovely woman, and has been an amazing champion of me, but I am desperate for me not to be ill for the rest of my life, so when she refused to look at a possibility I came up with…
My journey to chronic illness
In November 2019, I travelled to South Africa to see my family. Mentally, I wasn’t in the best place and as it can be for family gatherings, it had its challenging moments. I returned tired and mentally depleted. This is my truth. December 2019 was a whirlwind month preparing for the family to come around…